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Research Data Management GuideClick here to chat with a librarian

Research Data Management (RDM) is the practice of managing, organising and preserving all of the information used to produce research, from the initial planning and searching through to post-publication. Navigate through the blue tabs above to learn more. This data comprises of a range of records such as notes, spreadsheets, surveys, emails, published material and grey literature.

Compliance

Within Australia, Researchers should consult the Australian Code for Responsible Conduct of Research, developed by the National Health and Medical Research Council (NHMRC), the Australian Research Council and Universities Australia. The Code provides a framework for responsible research conduct and is relevant across all research disciplines. Adherence to the code is a prerequisite for the receipt of funding by the NHMRC.  The latest edition of the Code is 2018.

Remember to always check and refer to Monash Health's Prompt policies and procedures as part of the overall process when conducting this research.

Copyright

Facts and data cannot be copyrighted but once the data is contained in a spreadsheet, database, report, tables, etc., then the information can be protected by copyright.  Copyright should be assigned correctly especially if data sets have been created from a variety of sources. Secondary users of data must obtain copyright clearance from the copyright holder/s and the owner of the data be acknowledged before data can be reproduced.

A research data repository or data centre will specify how data should be acknowledged and cited.  A repository can only store research data if all copyright holders are identified and give their permission allowing for the data to be archived and shared.


Licensing

Licenses can be applied to limit how certain data can be used.  This may be to protect the privacy of study participants or restrict the use of data by for-profit type use. It is important to fully check out license terms before using certain data or republishing it with ones's own research findings.

To ensure your requirements regarding re-use of your data are explicit, publish your data under a Creative Commons license.

Remember to always check and refer to Monash Health's Prompt policies and procedures as part of the overall process when conducting this research.

Privacy & Confidentiality

Please check Monash Health's Prompt document which outlines Monash Health employee requirements relating to privacy and confidentiality when conducting research Privacy and Confidentiality in Research.

Other documents that consider private and sensitive data and how this can be shared are listed below:-

  • Data Sharing Considerations for Human Research Ethics Committees : an Australian National Data Service (ANDS) guide that advises on how sensitive data can be published safely and ethically.
  • Publishing and Sharing Sensitive Data : an Australian National Data Service (ANDS) guide providing detailed information on why it is important to share sensitive data but how this can be done ethically.
  • Sensitive Data : the Australian National Data Service (ANDS) provides useful information relating to sensitive data and how to safely share it.  Includes links to information on de-identifying data and specifically on how medical and health data should be managed.

Remember to always check and refer to Monash Health's Prompt policies and procedures as part of the overall process when conducting this research.

Consent Forms

Consent is usually given before the commencement of research and data collection involving individuals.  Gaining informed consent is crucial for a researcher in meeting legal and ethical obligations. All appropriate information about the research has to be disclosed to participants so they can make an informed choice whether they want to be included in the research or not.  Consent must be given freely and be unambiguous and clearly affirms agreement to the gathering and processing of personal data.  Informed consent forms usually contain the information sheet and the consent certificate.

Remember to always check and refer to Monash Health's Prompt policies and procedures as part of the overall process when conducting this research.

Information Sheets

Information sheets are important in providing possible participants with relevant information about the research and how the data being collected will be used. Information sheets should include cover the following:

  • purpose of the research
  • what is involved in participating
  • benefits and risks of participating
  • details of the research including funding source, name of project, contact details and how to file a complaint and withdrawing procedure 
  • planned use of the data during the research cycle and after research has been completed, including how it will be disseminated, stored, published, archived, shared and re-used
  • how the data will be used ethically and the procedures that will be in place to keep the data secure and maintain confidentiality

Useful links:

Remember to always check and refer to Monash Health's Prompt policies and procedures as part of the overall process when conducting this research.

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